STRESS AND COPING STRATEGIES AMONG PARENTS OF CHILDREN WITH AUTISM SPECTRUM DISORDER
DOI:
https://doi.org/10.20319/pijss.2019.51.1729Keywords:
Autism, Parents, Stress and Coping StrategiesAbstract
Having a child with autism is a major event that negatively affects families, and force families to re-evaluate its plans, goals, and relationships in light of restrictions and limitations associated with child's disability, and resultant stresses in parents and their efficiency in coping with these stresses. This study aimed to assess stress and coping strategies among parents of children with autistic disorder. A purposive sample of thirty Parents of Autistic Children was recruited from the Center for Social and Preventive Medicine (child psychiatry out-patient clinic) in Abou-El-Rish University Hospital. Three tools were used to conduct the current study, demographic and medical data sheet, parent stress scale and coping strategies scale. The results indicated that, sixty percent of the studied parents had moderate level of stress. The results also showed that, more than fifty percent were using seeking information, avoidance and denial coping strategies. And finally, the results indicated high positive and significant correlation and acceptable predictable relation between levels of stress and coping strategies. In conclusion, children with autism require lifelong provision, management and service coordination.
References
Altiere, M., & Von Kluge, S., (2009). Family functioning and coping behaviors in parents of children with autism. Journal of child and family studies, 18(1), 83-92.
Autism Speaks. (2015). Parent's guide to applied behavior analysis. Retrieved from https://www.autismspeaks.
Bilgin, H., &Kucuk, L. (2010).Raising an autistic child: perspectives from Turkish mothers.Journal of child and adolescent psychiatric nursing, 23 (2), 92-99.
Centers for Disease Control and Prevention (CDC) (2014). CDC estimates 1 in 68 children has been identified with autism spectrum disorder. Retrieved April 10, 2014, from http://www.cdc.gov/media/releases/ 2014/p0327-autism-spectrum-disorder.html.
DeNisco, S., Tiago, C., &Kravitz, C., (2012).Working with the family of a child with ASDdisorders. (5th ed.). Pediatric Nursing, (4), 302-330.. Arlington, VA.
Ellis, P. (2010). Understanding research for nursing students: transforming nursing practice series. SAGE Publisher.
Fleishmann, A. (2014). Stress and parents of children with autism: A review of literature. Issues in Mental Health Nursing. Vol. 37-issue 3.
Gallagher, S., Whiteley, J., (2012). The association between stress and physical health problems in parents caring for children with intellectual disabilities is moderated by children's challenging behaviors. Journal of Health Psychology, 18(9), 1220-1231.
Grove, S., Burns, N., & Gray, J. (2013). The practice of nursing research: Appraisal, synthesis,and generation of evidence. St. Louis, MO: Elsevier.
Hall, R. & Graff, C. (2011). The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping.Com Pediat Nurse; 38(2): 4-25.
Hayes, S.& Watson, M. (2013). Acceptance and commitment therapy, relational frame theory, and the third wave of behavioral and cognitive therapies. Behavior Therapy, 35, 639–665.
Hosny, E. (2006). Parent Stress Scale.Institute of Postgraduate Childhood Studies.
Karst, J., & Van Hecke, A., (2012) Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15, 247-277.
Mount, N., & Dillon, D., (2014). Parents experiences of living with an adolescent diagnosed with an autism spectrum disorder. Educational & Child Psychology, 31(4), 72-81.
Picci, R. L., Oliva, F., Trivelli, F., Carezana, C., Zuffranieri, M., Ostacoli, L., Furlan, P. M., &Lala, R. (2015).Emotional Burden and Coping Strategies of Parents of Children with Rare Diseases. Journal of Child and Family Studies, 24, 514–522.
Pisula, E., & Kossakowska, Z., (2016). Parenting stress in mothers and fathers of children with autism spectrum disorders. Located at: https://www.research gate.net
Polit, D., & Hungler, C. (2010). Generalization in qualitative and quantitative research: myths and strategies. Int J Nurs Stud, 47(11): 1451-8.
Sawyer, M. G., Bittman, M., La Grecca, A. M., Crettenden, A.D., Harchak, T. F., & Martin, J.(2010)Time demands of caring for children with autism: What are the implications for maternal mental health? Journal of Autism and Developmental Disorders, 40, 620-62.
Seymour, M., Wood, C., Giallo, R., &Jellett, R. (2013).Fatigue, Stress and Coping in Mothers of Children with an Autism Spectrum Disorder. Journal of Autism & Developmental Disorders, 43, 1547–1554.
Silva, M., & Schalock, M. (2012). Sense and self-regulation checklist, a measure of comorbid autism symptoms: initial psychometric evidence. The American Journal of occupational therapy, 66, 177-186.
Sommer, J. (2013).Grief and loss.Retrieved from https://www caregiver.org/grief-and-loss.
Wang, P., Michaels, C. A., & Day, M. S. (2011). Stresses and Coping Strategies of Chinese Families with Children with Autism and Other Developmental Disabilities. Journal of Autism & Developmental Disorders, 41, 783–795.
Woodman, A. C., & Hauser, C. P. (2013).The role of coping strategies in predicting change in parenting efficacy and depressive symptoms among mothers of adolescents with developmental disabilities. Journal of Intellectual Disability Research, 57(6), 513-530
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2019 Authors
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.